NICU grad

DELAYED BUT NOT DENIED

DELAYED BUT NOT DENIED

If you've been following our journey you will know that it hasn't always been easy. Both my husband and I have always been on the same page about being transparent and just keeping it real. Over the past few we've both been a little concerned about Jaxson's speech. He's 20 months old and 16 months adjusted. In February we updated his IFP (Individual Family Plan) with our new Regional Center and I expressed our concerns.

Jaxson turns 1

Jaxson turns 1

On July 18, 2015 I was 22 weeks and 6 days, after 10 long and painful hours you entered the world at 2:08pm via emergency c-section weighing 1lb 2.9oz and 11 inches long.  I later found out that you were resuscitated 3 times before stabilizing- you would then settle into what would be your home for 119 days. We prayed fervently, taking each day as it came...you developed each day before our eyes.

9 Months

I would be telling a story if I said it didn't feel like just yesterday I gave birth to my little miracle. The day everything changed and our lives would never be the same. I'm a different me than I was 9 months ago. I've grown and changed in so many ways. Life has more meaning and purpose. Knowing and living my purpose was something I began to struggle with prior to having Jaxson. Yes I had a pretty stable life...great career, small business and the love of my life. Yet I still felt like something was missing. There was an emptiness inside- I prayed many days and nights asking God to show me what he wanted me to do and what more he wanted for my life. Of course I always knew I wanted to be a mother but never knew that actually becoming a mom would give me so much life and be an answered prayer. Alas purpose! Although our 9 months of pregnancy was literally cut in half, I am still beyond thankful for the gift to bringing a child into the world.

Our journey in itself has opened my eyes to how precious and refreshing new life truly is. My sons life has taught me what true strength is, what true love is and I am beyond grateful that God specifically purposed ME to be Jaxson's mother! I'm amazed daily at how far we have come since July 18, 2015.

The time has quickly flown by and I feel that with each passing day I blink and my son is bigger, brighter and so much more amazing than the day before. I had heard the phrase before having kids but boy oh boy do I really understand it now. My heart is so full when I look at our miracle and he smiles at me or rest his right hand in my shirt for comfort. At 9 months Jaxson is the happiest baby- he's strong, brave and healthy. Despite his very early arrival he is healthy. I thank God for his health. At our 9 month check up our pediatrician wrote an order to discontinue oxygen support! Um amazing! For several weeks my husband and I had started the weaning process and Jaxson has been doing so well so we kept going. His lungs are so much stronger than they used to be.

 

Our prayers once again have been answered. We will now have to adjust to a life without wires. A life of normalcy so to speak. The future is so bright for our 22 week preemie, to say I'm excited yet nervous would be an understatement. He doesn't know a life without oxygen support or a pulse oximeter, but now he will and for that I smile with a grateful heart and say, thank you Lord! I'm amazed at your work!